List of useful organisations
Palliative and end of life care
England, Wales and Northern Ireland
The National Council for Palliative Care
The National Council for Palliative Care (NCPC) is the lead charity for the Dying Matters Coalition and the umbrella charity for all those involved in providing, commissioning and using palliative care and hospice services in England, Wales and Northern Ireland. NCPC promotes the extension and improvement of palliative care services for everyone with life-threatening and life-limiting conditions. NCPC promotes palliative care in health and social care settings across all sectors to government, national and local policy makers.
Services in Scotland are provided by The Scottish Partnership for Palliative Care.
Children and young people
Together for Short Lives
There are an estimated 49,000 children and young people in the UK living with a life-threatening or life-limiting condition that may require palliative care services. Together for Short Lives is there for every one of these children, and their families, so they know where to go for help and are aware of the support available to them. With the right kind of information, it can be easier to access care and support, as well as practical and emotional help for the whole family when it’s needed most. We provide information to families so they know what to expect at different stages throughout their journey.
Bridging children's and adult services
The Transitions Partnership was set up by NCPC, ACT, Children’s Hospices UK and Help the Hospices. It looks at the specific challenges of transition between children and adult services. The partnership is working to improve understanding of transition and development of services. To read more on this partnership visit:
Help the Hospices is a leading charity supporting hospice care throughout the UK. If you are a patient, carer or have an interest in hospice and palliative care the following link will provide information.
Think About Your Life is a website for people with cancer or another chronic illness. It was was created by cancer survivors. Users choose from a range of free 'person-centered thinking tools' which they can use to express their hopes, fears, state of mind, whether they're having a good or bad day, etc. Think About Your Life offers workshops, coffee chats and consultation sessions to help people use the tools effectively.
Registering a Will
There is no point in writing a Will if your benefactors cannot find it when the time comes. Not being able to locate a Will can cause untold distress and potential financial loss to a family or beneficiaries. Make sure you and your loved ones have peace of mind by taking that extra step and register your Will. Certainty, the national Wills register used by the legal profession, is offering Dying Matters supporters the chance to register their Wills completely FREE! Using Certainty's registration process, it takes just 60 seconds to record the location of your Will. This ensures that if your Will is misplaced or forgotten over the passage of time, its location can be identified.
Register your Will for FREE now: www.certainty.co.uk/dyingmatters
Help with pets
The Cinnamon Trust is a national charity aimed at relieving the anxieties and problems faced by elderly and terminally ill people and their pets. They provide practical help when any aspect of day to day care poses a problem, eg: walking a dog for a housebound owner, as well as offering pet fostering services.
The NCPC produce policy and practical guidance, covering a wide range of issues to support end of life care. Recently, these have included concentrated work and publications relating to the care of:
- People with dementia
- People with chronic respiratory diseases including Chronic Obstructive Pulmonary Disease (COPD)
- People with neurological conditions
- People with multiple conditions such as cancer and a stroke
More information and details of how to access NCPC’s resources, or subscribe to them, can be found on their website, www.ncpc.org.uk. There is also information on how you can help shape NCPC’s work through its public involvement programme.