ONS launches new survey to measure care at the end of life

25 October 2011
The Office for National Statistics has launched a national survey to measure experiences of care at the end of life.

It will provide important information for the key services – the NHS, care homes and hospices - that care for people at the end of their lives, to help improve people’s experiences at this sensitive time.

The survey, which has been commissioned by the Department of Health is being sent to 49,000 people across England - one in seven of all those who registered a death between November 2010 and June 2011 - seeking their views on the care that their loved one received, as well as the care and support they were given themselves.

This survey will provide an opportunity for those who have cared for a loved one at the end of their life to make a real contribution to improving services for others. The information will be treated in confidence, and if anyone is distressed by the questions asked they can contact the ONS enquiry line or Cruse Bereavement Care advisers.

The Department of Health has funded ONS to undertake this survey as part of their End of Life Care Strategy. The information to be collected reflects the ambition of that strategy to ensure that care is compassionate, appropriate and gives people choices in where and how they are cared for.

The first national End of Life Care Strategy for England identified feedback from people at the end of life, and their families and carers, on their experiences of care as a particularly important gap in the available information.

The results of the national survey will be completed by the end of March 2012, and will provide valuable information to inform future development of services.

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