Dying Matters CEO to chair end of life care choice review

29 July 2014
A review of choice in end of life care is to be chaired by Claire Henry, Chief Executive of the National Council for Palliative Care (NCPC), the lead charity for Dying Matters.

The review, which will be undertaken by an independently-led programme board, has been launched to ensure adults at the end of life, their carers and family have more choice. It is a significant milestone in the government’s commitment to increasing choice in end of life care and will look at a variety of different aspects including what people want, the support they need and the services required to make choice a reality.

Leading experts in end of life care will join Claire to make up the board, bringing experience from a wide range of perspectives, including: charity, health and social care, policy making, carer and personal experience of end of life care services.

The review will provide advice to government on improving the quality and experience of care for adults at the end of life, their carers and those who are important to them by expanding choice.

According to its Terms of Reference, the review will "provide advice to ministers on improving the quality and experience of care for adults at the end of life, their carers and others who are important to them by expanding choice". 

This advice will cover:

  • What people want and the nature of the choices being offered
  • The main reasons why people are not able to exercise choice in end of life care
  • Practical solutions which could make choice available and possible for all at the end of life
  • The levels of service provision required to ensure that choices being offered are achievable, flexible, responsive to changing circumstances and equitable
  • The mechanisms required to measure outcomes and experience of people in relation to their preferences.

Claire has a wealth of experience in end of life care. Before joining NCPC earlier this year, she was Programme Director for the National End of Life Care Programme, which supported the implementation of the National End of Life Care Strategy for England. Her previous roles have included National Director for the NHS End of Life Care Programme supporting SHA, PCTs and other organisations to improve the quality of care for all adult patients nearing the end of life. She had a number of roles within the Cancer Services Collaborative ‘Improvement Partnership’, supporting cancer networks in the implementation of service redesign for cancer services. Claire’s background is in nursing. She trained at South Lincolnshire School of Nursing. After qualifying, Claire worked predominately in cancer and palliative care.

She said: “I am delighted to have been asked to Chair a review into such an important issue. We only have one chance to get it right for people who are dying, but despite some excellent practice many people are not currently getting the care and support that is right for them.

“I look forward to working alongside such an experienced and expert programme board and with a wide range of stakeholders in the coming months, and will not waver from my commitment to ensuring that the advice we give to government enables choice to be expanded and improve the quality and experience of care for adults at the end of life, their carers and those who are important to them.”

The board will present its findings and advice to Government in February 2015.

Share your views

Visit www.ncpc.org.uk/ChoiceOffersConsultation to find out how you can take part in the consultation.

Read the press release

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