Dying Matters campaigner receives MBE

25 October 2012
Dying Matters and National Council for Palliative Care (NCPC) campaigner Mandy Paine has received an MBE from Prince Charles in recognition of her work with us.

Mandy, who has chronic obstructive pulmonary disease (COPD) and needs to use oxygen 24 hours a day, has a long involvement with both organisations. She is a member of NCPC’s People in Partnership Steering group and Chronic Respiratory Diseases Group, and played a key role in the development of our Difficult Conversations booklet on COPD. She is also a Dying Matters champion and has spoken widely at NCPC and Dying Matters events. Most recently, Mandy recorded a song to raise funds for NCPC.

Mandy said she was delighted to have been recognised for her end of life care work. 

“I am absolutely thrilled to have been awarded an MBE and delighted that the importance of involving people with personal experience in end of life care has been recognised. I thoroughly enjoyed every minute of my trip to Buckingham Palace, as well as meeting Prince Charles and still can’t believe that it actually happened. It really was a dream come true!  

As someone who has a life-limiting illness I passionately believe that end of life care can only be improved by involving people with personal experience and by more public discussion about end of life issues. I really hope my story inspires other people to get involved."

Eve Richardson, Chief Executive of the National Council for Palliative Care and the Dying Matters Coalition, added:

“Through her tireless work with the National Council for Palliative Care and as a Dying Matters champion Mandy has played a key role in ensuring that people with personal experience are involved in improving how people are cared for and supported at their end of their lives. She is a true inspiration and I am so pleased that Mandy’s commitment and contribution to end of life care has been recognised with a really well deserved MBE.”


Mandy's fundraising song wins celebrity support

Mandy Paine: Why Dying Matters


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