Share Your Story
Hearing about others' experiences can be helpful when dealing with death and bereavement. Do you have a personal experience that you'd feel comfortable sharing with the campaign? If so, let us know...
I have been with my husband Gary for only eight years. We had both been in bad marriages before, and I also lost my last partner over ten years ago to a heart attack. Gary and I always say we wish we had met when we were young so we could have our whole lives together; but I've said to him that we shouldn't worry about it as we have our whole lives from now on together. The past eight years have been the happiest of my life, and he feels the same. We are soul mates.
But a bombshell has hit us. In a few short weeks our lives have been devastated as my lovely hubby has been diagnosed with a glioblastoma grade 4 brain tumour. The prognosis is very bad. He has had an operation to remove some tumour and then was going to start chemo and radiotherapy to prolong his life for up to two years. But in the five weeks since the operation his tumour is so aggressive that he had to have another operation to remove more of it before starting the other treatment.
I am with Gary every day and can see how this terrible disease is changing his personality among other things. I can also see that he is angry that just when we are finally having some happiness in our lives this is going to cheat us out of it. But through this now and whatever is yet to come, I know I wouldn't have missed my years with Gary for anything. He has shown me enough love to last me a lifetime.
It helps to know there are lots of other people who can relate to our story and can discuss it on here and with each other, so we don't feel alone.
I love you Gary, my wonderful husband, and will treasure every minute of every day we have left together.
The Dying Matters Coalition is led by the National Council for Palliative Care,
the umbrella charity for end of life care in England, Wales and Northern Ireland.
Freephone 08000 21 44 66