Share Your Story
Hearing about others' experiences can be helpful when dealing with death and bereavement. Do you have a personal experience that you'd feel comfortable sharing with the campaign? If so, let us know...
After nursing my elder brother for the past year, who was suffering from terminal throat cancer, the last four days of his life were unbearable. His last year has been an eye-opener on how bad care can be.
District nurses unavailable, incorrect treatment and lack of support. Every time we asked for help we were treated as if we were asking for their own skin, simple pressure cushions are compared to gold. Yet the worst treatment was yet to come.
When Roger was admitted to hospital with a chest infection in January 2011, he was treated very well, recovered and came home. However, when readmitted one month later, things were very different. Admitted onto a ward that assesses what ward you need to be sent to was a very different thing. He was left in agony, with insufficient pain relief for many hours, antibiotics were not given soon enough which allow infection to set in; then to remove the antibiotics on the second day of treatment, then say he was not responding to them after one dose. Failure to control pain for three days, with the consultant saying one thing and nursing staff doing something else.
Having spoken to my own GP of my findings and upsets, he accepts that treatment is bad and just shakes his head, not in disgust but that this is the normal level of care. God alone knows how long you will last with no one fighting your corner, but Roger only lasted four days in their care.
The Dying Matters Coalition is led by the National Council for Palliative Care,
the umbrella charity for end of life care in England, Wales and Northern Ireland.
Freephone 08000 21 44 66