Share Your Story
Hearing about others' experiences can be helpful when dealing with death and bereavement. Do you have a personal experience that you'd feel comfortable sharing with the campaign? If so, let us know...
My husband Barry passed away at 64, after suffering from Grade IV brain tumour.
We knew that he would not have long, but mercifully he kept forgetting that the doctor said three to four months, even with treatment.
We had discussed our wishes about death long ago, and I wasn't going to trouble him about funeral arrangements and so on. Unfortunately he suffered a stroke, caused by the tumour, and was thereafter in hospital for six weeks, coming home finally to be with me.
He was gradually fading away, becoming less aware and eating very little. He died peacefully, having been unconscious for some time. His passing was so quiet; he just stopped breathing, took another last breath, and went.
This has had a profound effect on me, apart from his loss. I am no longer afraid of death; indeed, sometimes it is harder to carry on living. There is a vacuum in my life, and everything feels rather strange. I am trying to get my life back, and get to work, but we were together nearly 40 years and being alone takes a lot of getting used to.
The Dying Matters Coalition is led by the National Council for Palliative Care,
the umbrella charity for end of life care in England, Wales and Northern Ireland.
Freephone 08000 21 44 66