#BigConversation: To be or not to be - that is the question

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10 May 2016
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Contact Name: Sarah Russell, co founder
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The #BigConversation – to be or not to be that is the question

Hosted by @Rachel_EOLP and @CompassionateCP and @learnhospice In the midst of Dying Matters week, our @WeEOLC chat aims to be a reflective and contemplative space.

The need for and value of early conversations about future care, how their condition might affect people in the future, treatment preferences and opportunities to record wishes and decisions for people with incurable illness is well reported in the literature. There is also evidence that conversations about the end of life do not increase patient distress or remove hope.

However, what does it mean if people do not want to talk about their dying or future wishes?

Is it a sign of denial of their illness, a lack of awareness of dying, evidence of poor communication from doctors, nurses and other health care professionals or their own individual way to live with and face dying?

What do you think?

What are your experiences?

What does a compassionate community mean?

Whether we talk or not talk about the #BigConversation how can we be a caring compassionate community? A Compassionate Community involves families, friends and other community members supporting each other to live well, age well, grieve well and die well.

Have a look at

https://youtu.be/GR1StBdMltk from Milford Care Centre in Ireland

http://eolp.org.uk/ from End of Life Partnership in Cheshire

What else have you found helpful and want to share?

Join us to reflect, discuss and share in our tweet chat on

Tuesday 10th May 2016 8-9pm #WeEOLC #BigConversation

The #BigConversation – to be or not to be that is the question

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